tag:blogger.com,1999:blog-7858750232115461289.post7688486711791925082..comments2022-11-09T06:21:03.212-08:00Comments on our precious baby boy: I smiled at mom today!!!!lilwedwritinghoodhttp://www.blogger.com/profile/13712008023720262802noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7858750232115461289.post-40741908068184352702009-10-12T22:27:25.018-07:002009-10-12T22:27:25.018-07:00Hi Jenna. My name is Brooke. I found your blog thr...Hi Jenna. My name is Brooke. I found your blog through Kai and Chelsea's blog. <br />I too have a son with Dwarfism. He has SED. <br /><br />I was in tears reading your post. I went though a lot of what you are going through. At 6 weeks we took our son home from Spokane Washington and had a similar experience on the airplane. They almost grounded the plane. Air-Med helicopter flew up and when we landed in Salt Lake City Utah there were ambulances and paramedics waiting. He was on oxygen for 5 months but is doing great now, except every winter when he gets sick. He will be three next month and he has had RSV every winter. Somehow he makes it through all his challenges. As I will pray your son will! <br /><br />Doctors at cedar Sinai wrote in his radiology diagnosis report his SED was a type so severe he would not live through his first year of life. He is now a SED miracle and doctors can't believe how healthy he is.<br /><br />They are incredible miracles in our lives. I believe my son chose to come this way. I think he sacrificed himself to teach his loved ones lessons....lessons we would never have learned with out him.<br /><br />I will pray for your son! I am sorry for your pain and worry. That first year I was a mess. I pray God will carry you through this difficult time. <br /><br />PS. My son also had much better oxygen levels when we were in eastern Washington, near Clarkston WA, Lewiston ID, which is at sea level.<br /><br />Let me know if I can ever do anything for you!Dallingshttps://www.blogger.com/profile/06270739284732963195noreply@blogger.com