Friday, May 29, 2009

Test Results

First of all I want to apologize to those of you that will have to hear this news here. I just don't have the strength to make calls or talk to anyone. Our test results came back and our baby has a lethal skeletal dysplasia. Campomelic Dysplasia, One of the ones I dreaded and feared but was sure that God wouldn't allow. We are told we will have minutes and possibly days at best with him after birth. My heart is so broken as is Nicks and the childrens. I still have 3 months of pregnancy and fear others comments like when are you due? What are you having? I dread my doctors appointments where I used to walk in with such joy, where I would sit and look at pregnancy magazines and make plans and dream about my child's life. I am afraid to go to my ultrasound and fall in love with him even more as he looks so perfect swimming in my womb, I fear most of all giving birth to my baby and having to say goodbye to him. I fear never being the same again. Please forgive me/us if we hibernate for awhile.


  1. Jen,

    I'm so sorry. I'm here if you want to talk about it. I'm still praying for a miracle and keeping faith that everything will turn out ok.

    I understand your need to hibernate, but don't forget you have people who love you and want to be there for you when you're ready.

    Love Mom

  2. Hi Jen,

    I saw your blog post on Campomelic Families and came over to visit. I understand how unbelievably tough it is for you right now. I will keep your family in our prayers. Our daughter Sonya was misdiagnosed as having CD and has recently been diagnosed with moderate to severe Osteogenesis Imperfecta (brittle bones disease, another type of dwarfism). We too have a blog at and you are welcome to read about Sonya's rocky journey. Again you are in our prayers!

    Melissa Swartley

  3. Stacey Stone again. I'm one of those people that is still struggling with how God can allow such horrible things to happen, when there is so much faith and prayers in someone's behalf. There's nothing I can say to make this better, I know. Those 4 months after we were told our baby probably had CD were the worst of my life. I am so sorry. If you want to talk, send me a message at Grant's site and I'll send you my email.

  4. I am so sorry. My heart is breaking for you in so many places right now. Your my baby sister and I want to keep and protect you from any hurt. I am right here whenever you need me. I love you and Peanut so much. I know my tears are nothing compared with yours, but know that I am crying with you. But just like mom said, I will not give up hope. Yes, God does allow bad things to happen in our lives for reasons we cannot comprehend as humans. Trust in Him, hold onto Him, let Him take you through this. Never stop having faith. I know what I dreamed.
    Love you

  5. I came here from a link that Darlene posted. I'm so very sorry. My heart is broken for you and your family.
    I am praying for you all.
    Take care,

  6. I very sorry for what is happening to your family. I know you don't know me but i just read a book that might help you though this it is Summer by Karen Kingsbury and just enjoy every day and every mintue that you have with your family and know that you and your family are love and we are parying for you and please read the book it has a story in just like yours it may help you
    Until next time,
    In His light and love,
    Holly Neth