We are all super ready to be out of the hospital and get on with our lives at home. Right now this is our home and if you know me at all, you know how I feel about brushing my teeth in a public restroom. I almost gagged writing that. LOL It is so hard, every time I go into there to brush my teeth I try and find a spot that is clean to look at so I wont get sicked out! I can't go in after anyone else because even the slightest smell sets off my gagging. There are only two parent bathrooms on the 4th floor and one of them has a shower in it. It is always full of hair(well not always) and some people dont smell good showering. It's just one of the many things that are hard about not being at home. One of the small sacrifices we make each day along with the other parents, for love of our babies.
Nicolas is doing well. He is gaining weight. He is sprinting off of his vent for up to an hour and a half at a time. He is starting to roll over, and loves playing with his toys. He smiles at the nurses in his mirror we have set up by his crib. What a lifesaver it has been. It opens up his world and allows him to see what is going on and it makes him a lot happier!
The other kids are staying at grandpas. They came and stayed with us at the RMH and we enjoyed that. It gets expensive though eating out every meal with so many people. It is bad enough with just Nick and I. Nick got food poisening and was sicker than ever yesterday. Poor guy!
We are dealing with so much, case management here is a nightmare. We are hoping to be able to go home next week. Will let you know when we finally get home! Love, jenna
He's looking good. Does he still have the iv ? or is that an older picture? I miss you guys alot. Glad he's doing good, I hope you can get out of there soon. Love Mom
ReplyDeleteHere is a link to more information about the genetics of Skeletal Dysplasia that was prepared by our genetic counselor and which has links to some useful resources for those dealing with this condition: http://www.accessdna.com/condition/Skeletal_Dysplasia/415. There is also a phone number listed if you need to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA
ReplyDeleteHappy Easter! I hope all of you are doing well. I keep praying for little Nick's fast healing! GOD BLESS YOU!
ReplyDeleteHi! Had not stopped in in awhile. . . I admire you! God speaks to my heart through the testimony of your little man. Keep on keepin' on!
ReplyDeleteLove,
Emily
Hi Jenna,
ReplyDeleteGod has put you, Nicolas, and your family on my heart recently so I thought I would come by and check in. I see that there hasnt been an update in a while (belive me, I understand why!), but I hope that everything is going well.
Just know that you all are being prayed for...
Lots of love,
Victoria Nelson